Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own BodyMartin Pistorius
Recently featured on an NPR segment and the Today show.At the young age of 12, Martin Pistorius fell inexplicably sick. He began to lose his voice entirely and quit eating. He would sleep all the time and shun any human contact. Doctors were mystified. Within eighteen mont... Read More
At the young age of 12, Martin Pistorius fell inexplicably sick. He began to lose his voice entirely and quit eating. He would sleep all the time and shun any human contact. Doctors were mystified. Within eighteen months, he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.
Eventually, Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone - or so they thought. Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body is the heart-wrenching story of one boy’s return to life through the power of love and faith. The book shares the power of a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.
However, this is also the story of a life reclaimed, a business created and a new love kindled - all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.
Page Count: 288
- Product type: Book
- Format: Softcover
- Release Date: Nov 12, 2013
- UPC: 9781400205837
- Volumes/Discs: 1
- Pages: 276
- Publish Date: Nov 12, 2013
- Language: English
- Audience Age Maximum: 0
- Audience Age Minimum: 0
- BISAC: "REL062000"
- ISBN: 1400205832
Customer ReviewsWrite your own review
- A Remarkable Story of a Remarkable Man by Jennifer on 2/8/2015
FTC disclaimer: I received a copy of this book in exchange for a review. All opinions are my own.
What would it be like to start having medical problems and doctors can't find a solution? What if those medical problems start robbing you of your normal childhood? Then what if they put you into a coma for years? How would you feel if a few years later you "wake up" but are unable to tell anyone you are alert because your body will not move? When your days are spent at a care facility that plays Barney nonstop, how would you deal? Would anyone ever find you are in there? Are you destined to spend the rest of your life not being able to communicate all the while people are talking about you not knowing you realize what they are saying? This was the world of Martin Pistorius until a massage therapist was convinced he was alert but being held back from communication by his body.
Martin Pistorius was not so lucky to have a way to communicate. Once his massage therapist felt he was only being limited by his physical condition and he was bright and knowledgeable a lot of hard work was ahead of him, but he tackled it with intensity. This book is the story of his life during the time when he had no voice. When some caregivers would abuse him and others like him because they never thought they would be found out. It is the story of how he first identified a picture of a sandwich and how he later became an international speaker for those who use alternative communication. This is a true story of what one person can accomplish with those who believe in him, support him, and help him.
This book fascinated me. It was depressing in the beginning, then filled with hope, and then the joy of his success. If you enjoy non-fiction, are a care-giver, or are looking for a story of a man with courage and perseverance, I really think you will enjoy this memoir. One word of note, this is a very truthful book, and although h is a Christian, there are a few things I feel would be inappropriate for younger teens reading this book. It's not likely one to appeal to that age group, but I felt I should mention that.
- Interesting Insight by Cristi on 2/3/2015
I had come across Ghost Boy on my Kindle a while back and downloaded the sample because it sounded like a book I would find interesting. I am so glad that I got the opportunity to read this book. I think sometimes when we see someone who is in a wheel chair who can not speak or control their limbs we might not think that they can hear what we are saying or have any cognitive ability, but as Martin Pistorius takes us through his journey with illness, we learn that it is not necessarily true. Prior to age 12 Pistorius was a normal little boy, but then he fell ill and was never his old healthy self again. However, through the book we learn of the frustrations he went through as he wanted to communicate and was unable to get his body to cooperate to be able to do so. He was finally able to start communicating thanks to the faith of one of his caretakers who launches him on the road back to what normalcy he could obtain. Ghost Boy is an intimate look into the thoughts and feelings of a boy of his disease, of his caretakers, of his inability to communicate and of how far he has come from that time in his life. This is a must read for anyone!